Today was Elizabeth's weekly weight check. As I was sitting in the doctors office surrounded by "typical" children I suddenly found a sense of overwhelming grief. The mother to my left was feeding her four month old with a BOTTLE. My arms yearned to hold my sweet baby and fill her little tummy with a bottle of milk. 98% of the time my grief has nothing to do with her delays. I grief that my child cannot eat and all the things she'll never be able to eat. Her diet will make food very limited causing it to be difficult for her to be able to substain herself on food alone causing the Gtube to always be a possible life long need.
In the midst of my "pity party" I had to remind myself to be grateful for "that thing" without it our sweet girl would not be here. I was also thrown out of my pity party when her nutritionist informed me I could go to biweekly weight checks abd we would have to lower the calories in her formula due to her rapid weight gain. Elizabeth has averaged 17grams a day where as a "typical" child is only gaining 4-10grams a day. I'm pretty sure this is the first time we've met, much less exceeded, a "typical" child's goal. With that my pity party was over. I was suddenly thrown into an actual party! I was beyond excited. Still am! God blesses us in so many ways we just have to dig a little deeper sometimes. And those things are worth digging for!!!
No comments:
Post a Comment