There's always a look. A small twinkle in someone's eyes when you says "She's 14 months old. I know but believe it or not she's huge compared to where we started at. The downs doesn't help either." And then the polite smile, followed by the "Well she's beautiful." Do not get me wrong I know each smile, twinkle, and polite denial of her lack of facial features are heartfelt and I love each and everyone! I love telling people she has downs and following it with a smile that says "
Really it's okay. We adore her and wouldn't trade her for "normal" if I could. Please don't be sad celebrate her difference." I truley mean it. I love to reassure people that it's A-Oh-Kay! I'm proud of my beautiful set of friends that has never shied away from E's wonderful "nutrition substaning" piece of plastic and all the extra with it! I'm proud of the laughter that escapes at play dates over therapy questions. I thrive in moments where they want to cuddle her because theirs are too independent to cuddle. I say all these things to say ,
it's okay it really is. Never feel the need to follow up with the "
oh honey... Bless your heart" smile!
I was recently approached by a "follower" ( I feel snotty saying I have followers) and told that sometimes they felt guilty cause their child was healthy. To those that may feel that way to special needs parents, I can't speak for all but can for us, DON'T! None of my blogs in anyway are to make someone feel guilty. With that said.. I do hope my blogs inspire and create passion to celebrate, dance, sing,and jump up and down clapping excitement of being a parent! Not just a special needs parent but a mom/dad! We have God given rolls! We are the main character in the biggest role we'll play in a lifetime so study your lines, memorize them, and recite them with all the passion you can! The shows over so quickly!
A few photos of some of my beautiful friends sweet babies in church together:
My current favs:
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