I was reminded of that time. In my head its kinda like the "dark" time vs the good times. On the way home I cried and prayed fiercely for Elizabeth and our friends. I listened to a beautiful version of "How Great Though Art" and thought of how that song never seemed as clear as it did last night. I realized that this is all nothing for him. If you could heal the blind then he's certainly still in the business of healing these helpless babies! God has never forsaken my family and I know he won't yours. I can not promise you won't have circumstances that aren't ideal. I can promise he'll be there through it all!
Life's Journey as a loving wife and mother. Everyday up's and downs of dealing with the magical extra chromosome they call Down Syndrome!
Thursday, September 12, 2013
" How Great Though Art" isn't just an old hymn anymore
Elizabeth was discharged from the hospital yesterday. She had her last dose of antibiotics at 6pm and we left the hospital at 7:50 pm. Arriving home at almost 9 pm.
The entire way home I thanked God. I thanked him for always watching over Elizabeth. I thanked him for always providing a way. I thanked God for letting my girl COME home. My heart began to break. On my ,what felt like 1,000 mile trip, home I was reminded of friends I made along the way. Friends that did not bring their beautiful babies home. Friends that had to do the unthinkable. I was reminded of friends who where sitting in the NICU at that very moment loving on their baby in an ice-let (spelling?). I was reminded of the days,weeks, and months where all I could do was look at my baby. The weeks I couldn't really hold her for fear she would be too cold. I remembered that helplessness all too well! I remembered it. It was cold, scary, and almost suffocating. The whole time you feel like its a thick fog around you and if you breath in for one tiny second it will completely fill you lungs with led. Your stomach feels like you swallowed a ten pound weight. It feels as if you could literally count the knots. Your thoughts always linger in the "what ifs" never the "when's". Your day is filled with terms like: gas, CBC, grams, milliliters, TPNs, bicarb, chemistry panel, creatinine, Brady, 02 stats, hypo or hyper , "the light bulb", cc's, kilograms, pressure support, volume support, ounces are as important as pounds, etc.. The list could go on and on. You would kill for a conversation that doesn't revolve around blood work or excretions.
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